"When you have a handicapped child, you realize...the balance of the two sides of things...the weight of such a life and the indescribable grace that such a life offers...it's about trying to sort out why it feels so valuable, even though it might not look that way". Ian Brown, father of Walker, from the book THE BOY IN THE MOON: A Father's Journey to Understand His Extraordinary Son.
Yesterday, my husband and I attended their end-of-the-year musical program, "JUNGLE BOOGIE". Many of the kids can't even talk, yet they got totally involved with presenting songs to their parents, siblings, and grandparents. We felt honored and lucky to be looking on.
Keeping with the Jungle theme, Mary included a couple of Phil Collins songs from the Disney animated film, Tarzan.
The two she chose were Strangers Like Me and You'll Be in My Heart. I'll never again hear these songs in the same way. From now on, I'll always think of that Special Day and Mary's Special Kids - the lyrics communicated a poignant message to us from them...
With a soundtrack in the background, the oldest students performed Strangers Like Me, holding up signs with the words:
"Come with me and you'll see my world,
Where there's beauty beyond your dreams...
Take my hand - there's a world I need to know!"
The final song was performed by all the kids. You'll Be in My Heart speaks to what must surely be felt by every parent of a child with Special Needs, but my daughter had the children sing it to their parents. (Of course, my husband pretty much had to scrape me up off the floor after they'd finished this one...)
"This bond between us
Can't be broken
I will be here
Don't you cry.
'Cause you'll be in my heart
Yes, you'll be in my heart...
No matter what they say
You'll be in my heart...always.
Why can't they understand
The way we feel
They just don't trust
What they can't explain
I know we're different
But, deep inside us
We're not that
different at all
And you'll be in my heart
Yes, you'll be in my heart
From this day on
Now and forever more..."
Later, over lunch, Mary told us that when the performance was over she went to tell the kids goodbye. One boy, a fifth-grader who will be graduating this year, is unable to speak (with words); so he made the hand gestures she'd taught all the kids for their last song: looking deep in her eyes, with his hands outstretched to her, he reached them up over his head in a circle and brought them back down, crossing them over his chest. He was saying, "You'll be in my heart, from this day on, now and forever more..." He finished his message with a big hug for her. Indescribable Grace.